StephanieHello all! We have a 8 year old SWCAH son. His levels have been off for quite some time (I posted a while back about that!!). The endo just keeps increasing the Cortef, little by little. Now he is on 17.5 mg Cortef a day (5 mg in the AM, 5 mg in the afternoon and 7.5 at bedtime). He has kept the Florinef the same (.1mg in the AM). Our son wieghs 52 lbs.
My question is: Is that a lot of steriod for an 8 year old or a child that weighs 52 lbs? About how much steriod should an 8 year old be on?
My endo said that it is a large dose, but that it is obviously what is needed to get the levels down! I have asked about the circadian dosing, and my endo always says no. I’d personally rather try that than keep increasing the steriods.
Any comments/suggestions?
THANKS A TON! What a blessing this board is!