Karen I did answer you:- please feel free to ask anymore questions

Yes Karen, his bone age was never a problem, although sometimes it was 6 months advanced.  When he was 14 we changed endo’s and I had noticed he wasn’t growing, but he was on a high dose of steroids at the time - due to high 17 OHP levels.  The endo himself read the x-rays and we had a special meeting, so he could tell us that there was no growth left (endo is an expert on CAH and growth hormones).  My son was then 5’ 6" and also overweight! I asked about growth hormones and the endo said it would have no benefit, I was really upset as it happened so fast, his bone age seemed to advance 18 months in just over 6 months. The endo said, my son may with a bit of luck reach 5’ 7".  We cut down his dose a bit, he was on 65 mgs and he went down to 45 mgs a day and went to 4 doses a day.  Then he grew about 3" in a year!  Then endo was delighted and said my son did it to prove him wrong, but he was surprised and said as he always does, medicine is not an exact science. We had been told years ago that he should reach 5’ 11" but who knows?  He is happy with his height now and also is very thin, too thin! My sons 17 OHP levels have not been anywhere near normal for the past 4 years, so he has always been on high doses!  I empathise as I remember that feeling so well, I felt I had failed him and if only I had insisted on having the bone age done more regularly, such as 6 months, however it wouldn’t really have made any difference.   I am sure if you look back in the archives there have been others in a similar situation. Has your son had a dexa scan to see his bone density? This wont have anything to do with the growth as such, but feel it is important to see the density of the bones in spine and hip

Mary