re: re: My 3 week old son just diagnosed with SWCAH.
Sep. 29th, 2004   7:50pm

My son is now 10, but he sleeps right through his 10:30 PM dose (and sometimes the 7:15 AM dose on weekends/summer vacation).  We crush the tablets (you can get a pill crusher at any pharmacy) and mix them with a little water, then just shoot it in his mouth with an oral syringe.  When he was a baby he was on the suspension (which I believe has been discontinued because it wasn’t reliable), but we basically did the same - just shot it in his mouth.

It does all get easier to deal with over time.  We are still crazy when he gets ill, but generally life is normal.  We have never had to use the solu-Cortef (though we probably should have a couple times), but it is an absolute must to have it available - just in case.  Each child with CAH is different.  We have only had one ED/admission for dehydration.  He got a stomach bug that we just couldn’t keep up with a couple years ago.  Usually we are able to keep him hydrated with Pedialyte ok, but that time we couldn’t.

This is a great site for info, but remember each child is different.  There are many things I read here that are similar to what we have dealt with, but many others that are completely different.  The most important thing I have learned is that you have to be pro-active as much as possible, ask questions (although I don’t always get answers).

Good luck and enjoy that little bundle of joy!

 

 

RDO
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