re: re: re: re: archives seem to have some good threads on this...
Oct. 1st, 2004   10:13pm
Thank you to all who posted. I am hoping to hear more from others. I feel this is related some how to her Florinef intake or not intake enough. Make sense? Can anyone elaborate on that? What exactly does CAH patients get rid of through their urine? Is there such a study on to what is measured through urine. When they call them salt wasters, they are wasting salt. But can one measure the amount through their urine? I know this sounds wacky but they used to measure I think OHP levels through urine. I wonder if they can see what the body is ridding itself of through a urinalisis. I was thinking maybe her Florinef needed to be increased because I am really grasping now, but we cut her Florinef in half some time last year. I am going to check her records and see exactly when and see if it coincides with this urniary problem. I am calling her endo. Monday to talk this over with him. She is due for more blood tests this month. I will keep you informed. Thanks to everyone posting!! It helps a great deal!  
Laura
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