Carol M.Hi Steve,
I understand your point about Florinef not being the 100% equivalent of aldosterone. But, incomplete aldosterone replacement (i.e. too little Florinef) would mean the tendency for HIGH potassium levels in someone with CAH. So, I don’t don’t understand why you would want to add back something that you are trying to get rid of?
You said yourself that you felt worse after starting the potassium supplements. Could there possibly be a link?
Below is a little blurb from an emedicine article on CAH. As you can see, it cites hyperkalemia (HIGH levels of potassium in the blood) as being one of the dangers of CAH.
"....Severe forms of congenital adrenal hyperplasia are potentially fatal if unrecognized and untreated because of the severe cortisol and aldosterone deficiencies that result in salt wasting, hyponatremia, hyperkalemia, dehydration, and hypotension...."
http://www.emedicine.com/PED/topic48.htm