re: CAH and asthma
Oct. 3rd, 2004   8:17am
Yes, I have a 7 year old daughter. She has SWCAH. She was diagnosed with mild to moderate asthma a couple of years ago. We think it was brought on by a form of RSV. As you know RSV is a respiratory virus found in infants but her ped. says it can still be a form of a virus in older kids and adults. Go figure. She was taken into the E.R. on Feb. morning with that breathing that caused her ribs to show as she breathed. It was as if she was gasping for air. She had a high fever too. We thought it was a bad cold. They had to give her oxygen when we got there. They said she was asthmatic. They sent us home with a nebulizer. (device in which you can breath in your meds. to breath) I thought they were crazy. She had another cold a couple of weeks after she was released. We almost ended up in the E.R. again! But thanks to the breathing treatments, she was safe. Then again another cold and it was a fight to keep her out of the hospital. Soon by the end of April, she was running outside and stopped because she literally couldn’t breath. Talk about panic! We got her hooked up the the nebulizer and she was ok. We took her to her ped. who suggested we see an asthma clinic. Sure enough they diagnosed her with mild to moderate asthma. They tested her for allergies and found many different allergies. They felt this triggered it. I personally felt it was the virus that pushed her lungs over the edge. I think she has always had the allergies but the virus made them even more vulnerable. Even the in the hospital said she may have more episodes because she had that nasty virus. That was his reasoning for sending us home with a nebulizer which I thought they were crazy, until we had to use it again and again. She was put on a maintenence plan. Advair diskus it is called. An inhaled steriod. Something I was not happy about. She took the news well that she had yet another medical condition to add to her list. I myself was devastated and almost cried in the office when he told me. I couldn’t believe she had to endure yet another condition. But she has been a trooper with it. I think it is all on a good attitude. We try our hardest to be positive about anything that comes her way. We have since weined her down to one puff of the Advair diskus a day. We may take her completely off it by this Spring if we are lucky. We will see how the viruses of the winter treat her. Knock on wood, we have had some safe viruses since that bad winter when she was first diagnosed. I think she could be past it, we will see. I truly believe this was brought on by that nasty virus. Only time will tell. They say many children outgrow their asthma. Some refuse to call it asthma like my neighbor that continues to nebulize her son to death refusing to put him on a asthma plan. Poor kid. In the meantime he suffers. Make a note of this too. It is a mystery to her endo. yet. I swear that putting her on that steriod that she inhales upped her OHP levels. Even though the endo. and the asthma doc. talked about it and didn’t think it would. We are not sure if it was that or the fact we had to stress dose so often that past winter. I feel it was. The next tests should show. Good luck. If you need to email me I am at dlmack1@softhome.net.    
Laura
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