JuliaHi Margo,
Chelsea has NCAH and has been on depot-lupron for over 6 months now. She is 9. She has some pretty bad mood swings, but they are mostly expressed as crying fits or anxiety type attacks. She is obsessive compulsive about some things....like her meds. She will FLIP OUT if it gets close to her time to take her pill and we are in the car and she might be late taking her meds ( I fixed that one by keeping a bottle of water and extra cortef in the car and my purse). She FREAKS if there is something wrong with one of her pets (as I’m sure you saw posted we lost her cat Lion to Hartz poisoning) and now if her hamster doesn’t wake right away or if it’s cage door is slightly ajar she wigs out (just happened yesterday). She really doesn’t show anger or rage. At the conference over the weekend I asked this same question of the panel of adults with CAH and NCAH and the girl that answered me said "therapy, therapy, therapy". So I think you are on the right track. Chelsea is not in therapy at the moment, but I am strongly cosidering it. As for taking anxiety/anti-depressant meds, consider that most of them make you gain weight....add that to the steroid she is already taking and you are setting up for a weight battle. I know this personally because I have been on anti-anxiety, anti-depressants and gained a TON of weight and when I took myself off them, I lost 70 pounds......but now I am struggling with depression again, so it is a very fine line. Sorry I couldn’t be more positive in answering, but I am interested in what others have to say since this is something we are dealing with too. Maybe it will get better when they go off Lupron? I don’t know, cause then you are dealing with puberty full on.....tough one.