Hey,

I guess I’m writing to help ease my mind. Kind of feeling sorry for myself right  now. My SWCAH 8yr old son has been feeling sick since yesterday. No sleep for me what so ever. He has had no fever, no vomiting, no cold, no sinus problems or headaches.  Had a bout with diarehha (probably spelled that wrong) today.  So we tripled the cortef and he kept that down (a very good thing).  After about an hour with it and he was drained of all energy. I called the endo on call. (our endo is still on maternity leave. (She is going to have to stop having babies!) just kidding.  I always call when I triple and I was somewhat concerned because no other symptons and worried about dehydration.  He has been drinking all day long. Well I explained to the endo about him having SWCAH 8yrs old and the situation. He in turn said what are you saying you don’t know how to treat diarehha? That really made me mad. I in turn said YESSSSSSSS but with the CAH it is a big concern. He’s like what do you mean???? Well I said that is a sign of an adrenal crisis. He said give him liquids and if he doesnt vomit dont worry. If he gets worse though give him the shot! DOn’t bring him in to get a shot you give him the shot. I thought to myself who does he think he is. Been there already and to the ER enough to know what to do. If he needed the shot it would of already been given and we would of been at the ER regardless and no phone call would of been made except for to let them know we were on our way. Then he said  keep trippling the meds thru the night and tomorrow. As we were talking and I was going over the guidelines I have for adrenal crisis he did not say a word. After talking with him he explained he has never even seen the solu-cortef kit.  Couldn’t even tell me how to administer it.  So I was a total wreck from no sleep, worried about the diarehha and got no where with this endo (a jerk) sorry they make me mad. I guess I know my child and have lived with this for 8 yrs. Why did I even make that call.  You know sometimes I think I have it all together and know exactly what to do in and then theres these times whe I feel lost and don’t have a clue. Anyway the diarehha is gone. He is really tired and has drank gallons of gatorade. All is well. Just needed to talk to someone I guess.  I know we are the ones with the experience because we have 1st hand knowledge we live with it everyday. I’m wondering about these Dr.’s. I would like to start a live chat room where it is going 24/7 and we can talk back & forth with each other or give our thoughts on what to do in situations and/or just to listen and chat.  I know we are not experts and just giving our opinions on what to do from previous experience. What does anyone think about this. I know this is what this message board is for but sometimes not everyone is on here at all times or don’t respond to your message for awhile. Sounds like a good thing to me. If anyone is interested let me know.

Jenny