PaulGina,
How are you, hopefully your child is starting to feel better. I am a 23 year old male with SWCAH. My doctor recently told me and I can contest that a lack of medication can lead to a flu like feel. How is her weight, what is her energy like. These are important issues. Whenever I am on too little medication I am tired, feel sick, and my weight goes down. I wish there was a universal answer to CAH but it seems as though everyone reacts to the medication differently. Good luck.
Paul