re: re: re: re: re: re: To mary
Nov. 19th, 2004   4:19pm
I agree with you Carrie every child is a blessing, and relieved that I am not the only that does not see CAH as a blessing. I would not swap my son for anything or be without him, however he has suffered terribly due to his CAH. I do think this has made us extremely close, but it breaks my heart to watch him suffer, and I can assure you he has. His body does not react in the normal way to hydrocortisone, or any of the other drugs so things have not been easy for him. As you say it is the CAH that is not a blessing and I may be shot down for saying this, but I do not consider him extra special because he has CAH I call it very unlucky, he is special as all my children are. Through treatment which has really foxed several eminent specialists that many talk of on this board, his spine is now hunched, he will have pain for the rest of his life and may even need major spine surgery. Lets hope that one day they will find a cure - for CAH whether it be severe or mild! I am not meaning this with regards to anything you have said, I am trying to explain my thoughts. It is so easy to offend people without meaning too.
Mary
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