Ash,

My heart breaks for you and what your going through. Right now it seems like the very worst thing in the entire world but kids can be cruel, heck people in general can be cruel when you don’t fit into societies view of what "normal"should be. People are made fun of for so many reasons, their weight, their hair, their intelligence, their faith and it’s hard to handle when you’re a teenager and life seems so hectic all of the time.

My oldest son has CAH and is a salt waster. I can’t imagine how heart broken I would be if he went off his meds. I love him with all my heart and soul as I’m sure your family loves you. If my son gains weight I will do whatever I can to help him. Can you talk to your family about this and they can speak to your doctors until they "Get results"? Really sweetie your worth so very much and I’m sure there has been some great advice given here that someone else besides you can take to the doctors to see if they can get them to understand. They are only human and not God so they don’t know everything. If they don’t have CAH they can never fully understand what your going through.

I have carried a lot of extra weight in my life at different times and I know it has taken many many years for me to find that what was stated before was true. What we are shown to be normal (size 0’s or size 2’s) is not what the normal teen or grown woman actually looks like. The people we look up to and want to be like, look like, also have major problems in their lives but we think they life a life filled with only good things. Being thin, having money, driving a nice car or having a super job does not make you a happy person. The people who think that "stuff " makes you happy always seem to be looking for more stuff to fulfill them. In the end they end up empty and sad.

You sound like such a great person and I’m sure you are. Just remember that God gave you CAH for a reason and it was all planned out millions of years before you were born. He has a very special purpose for you even though it may take a long time to find out what it is. Maybe it’s to be here and to find a friend who loves you and cares about you. I know when my son was diagnosed with CAH I thought it was the end of our world and prayed for God to heal him. Then I was angry when he didn’t but now I know there was a bigger purpose for him to have CAH and so many wonderful people have come into our lives through this disorder that if I had to do it all over again I wouldn’t change one thing about our little boy.

If you feel the need to talk feel free to email me at halpin@fulton-net.com. I’ll be praying for you.

Love,

Jill