Hi all!  I have 2 girls, 8 & 6, both with ssw cah.  I have posted about this a few times but I’m hoping more people will read this and I can make sense of what is going on with me.  I went to the ER this weekend for a kidney stone that started on Thanksgiving.  I ended up with a terrible kidney infection.  I went to the ER yesterday because the pain was so severe and it turns out I am passing 2 more stones from each kidney and there were so many small stones in my kidneys they stopped counting.  The 2 that are about to pass are each almost 4 mm in size!  I am SUFFERING here!!!!  And it seems that the docs don’t know what is going on or what to do about it.  I have extremely high cortisol and salt levels even though I have a low sodium diet.  I drink about 4 liters of water a day but when they do urine studies it suggests I’m only drinking 1 liter/day.  I’m at wits end.  My husband has had to call off all this week and my parents had to take my girls for the weekend because I couldn’t do anything! This is no way to live and I am so frustrated by the docs!!!!  If anyone has any knowledge or insight to this, I would love to hear it!  Thank you so much!

Blessings.

Tonia