I am so sorry to hear about all your pain Tonia.  I know that it can rank right up there with labor pains only there’s no beautiful baby at the end of it all.

When I went in to have an ultrasound of my son (CAH) at about 8 weeks, they found a gall stone first.  I sufferred some terrible pain during the next nine months with the stones getting stuck.  Shortly after I had my son I had to have an emergency Gall bladder removal.  They said that in just 9 months there were so many stones and "gravel" that it probably wasn’t working anyway.

I am sorry that I can’t help you more.

Is your strain of CAH the salt wasting form?  If so, could that have something to do with it?