corrifirst of all, i would like to say that you also have it hard being where you are is hard enough it has to be even worse not being there for your wife and child!!! But yes it is hard when you have to deal with everything by your self, my husband is here but he is trying to start his own business and so he is never home so i feel like a single parent and when my son is sick i am the only one who has to deal with the extra meds and knowing when he needs more or not. but anyways yes adreanal shock can be fatal but you can stop that by making sure you get the proper meds when they need it. my son was 4 weeks old and ended up in the hopital for adreanal shock because we did not know he had this and it took them 2 weeks to figure out what was going on and i was told i was lucky he was alive since his sodium was 103 when he went to the hospital. we have a strict schedule with meds 6am 2 pm and 10pm he also had a seizure since his sodium dropped so low and since he has been well managed on his meds he has had 2 normal eegs and we are now weaning him off the sezuire med. we have been pretty lucky i think he has gone to the er for vomiting and had a horrific experince with a dr who knew nothing about cah even though he thinks he knows it all. but i put my foot down and wpuld not let them send him home and all is fine now, other than that everything has been managed well at home. it is also important to increase meds when they have a fever of 101 degrees or higher and vomiting and diarreha they need the shot. check with your endo and see what their guidlines are for all of this and also do some research and do what you think is right for your child parents usually know when something is not right with their child and dont pass that off with this. my thoughts are better to be safe than sorry. you can laugh at your self later if you overreacted but if you dont do something that you thought you should have and you may regret it later and you can never take that back. i hope this helps and tell your wife to check this site out she can get lots of support here from people in similar situations. she can also email one on one if she wants i know it helps me to know there are others out there and i am not alone in dealing with this. you can talk to your friends and family about this but until someone has dealt with this like we do than they really dont understand. my email address is awstearnes@cox.net please use it or tell your wife to if she ever needs anyone to talk to.
take care and keep safe!!!
Corri