Carol did such a good job of reviewing the meds - I can’t even touch that. But as I was reading your post I kept thinking that a parent knows best.

I have a 6 yr old son with SW CAH. We never really had problems with height, but have always struggled with his weight. I had endo after endo tell me his weight was not affected by the meds, even though he was severly oversuppressed. I tried to stand up for him as best I could, while balancing the need for continuity between caregivers (not to mention, tyring not to burn bridges in the small endo community)

I also started charting everything - what his levels were, when he took the meds, and how much mg/m2/day. Finally we found an endo I could communicate with, we switched his dose and timing and things improved.

I say go with your gut. You know if her meds are off. Now you just have to find a way out of the mess.

Sorry this is going to end abruptly, have to get off quick here.