Hello, My name is Lisa I have a five year old little girl who also has this condition. I think it is wonderful that you support her so.But yes it is very important that she always take her meds on time, or she can go into shock, If she is sick at all pay close attention.She should not have very much stress in her life. It’s a very hard thing for them. But they do really well if they do what the doctors tell them. I think it is womderful that your going on web sites to find out about this disorder. God bless the both of you.

                      Thank you Lisa I’ll pray for both of you