hey jessica! just wanted to let you know that my son had his one year old well child check today. our pediatrician feels like he needs physical therapy too! he feels like he has low muscle tone. i am not sure if that would be cah related b/c he is usually oversupressed not undersupressed. after talking it through, we decided to wait a little while before doing the therapy. he does more every month, mobility wise anyway, and he is still in the 95% with his body mass.  we are thinking that his chunkiness is contributing to his motor delays. he is not that far behind either. he will cruise everywhere, but doesn’t like to pull himself up. i truly feel like b/c my son has cah and that i am a nurse, our pediatrician is a little quick to "cover all bases." anyway, just wanted to let you know you and your little one are not alone :)

 

louise