I live in lincoln nebraska and have a 31/2 month old with SWCAH. I would love to talk to anyone in the area that has had some experience with this. This is out first child and it has been pretty overwhelming. We were in the hospital twice before they detected what was wrong. I love our pediatrician but am not to sure about the ped. endo. any suggestions on who to see in the omaha/lincoln area?Jill