I posted this in the controversy side also, but probably belongs here!

Hello,

This is my first post to this site.  I found this site while doing research on SWCAH which my son was diagnosed with at about 5 days after he was born.  He is now 4 months old and doing well (I think).  My concern is with his meds. 

My son was almost 10lbs when he was born and now weighs around 19lbs 26inches.  I am concerned that this may be too much weight gain?  I read that if someone is overtreated they can present cushingoid features.  He has a round face but I don’t know if this is from CAH treatment or just because he is a big baby?  Also was he a big baby because of his CAH?

Also how do other people give meds to thier infants?  My son is on hydrocortisone suspension which I heard is bad (I plan on discussing this with his endo on our next visit).  Do you have to give late night dosing?  We have to give a 11pm dose which is hard to do with a sleeping child (it dribbles out of his mouth).  I just wonder how long it will go on for!!?? 

Also does anyone else bring their child for blood draws about every 2 weeks!? This is agonizing since they always end up doing a heal stick because they can’t get a vein.  These blood draws are to check his electrolyte levels and sometimes his hormone levels. 

Any thoughts, suggestions or comments will all be greatly appreciated!!!

P.S.  I thank God everyday for my son whom I call "My little angel".  He is truly a gift and I wouldn’t change a thing about him CAH and all.  After all he wouldn’t be the precious little boy he is without it!