SaraThank you all for your responses!!!! All of your are very helpful. It feels good to be able to communicate with other people who are going throught the same things I am.
Wow I am suprised to see how many kids are on the suspension! Maybe it is okay to keep him on it?!
My son is on hydrocortisone ora-sweet suspension. We give it at 8am(1.5mg) 4pm(1.5mg) and 11pm(2mg). We give him florinef .1mg tab twice a day. We just disolve that in a little water in the muchkin medicator. He sucks it down!
I know heal sticks are not good. The blood gets hemolized and results are not accurate resulting in high potassium results. I don’t know how a heal stick effects his hormone tests. If they do get a vein (usually after 3-6 sticks) from him it clots right away and they have to do a heal stick anyway to make sure they have enough blood. They always say don’t worry it will get better! Hopefully soon.
Thanks again!!!