Even though my current doctor says it doesn’t matter, I’ve noticed a marked difference in my son’s levels depending on time of day.  The difference has been big enough that everytime we manage to get him tested early (by 9:30 AM) the doctor ends up increasing his dosage.

Also, my son is a carrier.  He tested at the very top range of carrier and the first doctor diagnosed him with CAH but he had genetic testing.  He had symptoms - underarm odor and pubic fuzz at 7, and his bone age advanced by 2 years in 6 months at one point, but I had a hard time getting him treated because everyone says that carriers don’t have symptoms.   Well, I respectfully disagree!  He’s taking a very small dose of cortef, which I think has very few risks, and it seems to have slowed the bone age advancement and his puberty has not progressed at all in two years so I think it was the right thing to do to treat him.

I would recommend getting them retested as early as possible in the morning and even if they are in the high carrier range, trying a small dose (5 mgs. a day?) to see if it slows down the puberty.  I think it’s better to try the Cortef than to jump into shots for puberty immediately which is much more invasive.