I was so glad to find this website several months ago, and although I hadn’t posted any messages until this point, I have learned alot from reading the messages here. It definitely made me feel less alone to know there are other families like mine out there.
I have four children, a girl (8), a boy (5 1/2), a girl (2 1/2), and another boy, Brayden, who has SWCAH and is 4 months old. He was diagnosed when he was 10 days old...and was nearly dead. His pediatrician said he would’ve been gone by morning if the Newborn Screening tests hadnt come back when they did. Like so many of you, I got on my knee’s and begged the Lord to save my baby, and He did.
Now for some questions, since I’m pretty new to all of this...anyone have any good ideas for getting salt and med’s into your children? I used to mix the Cortef/Florinef with a small amount of formula, but my little guy is such a spitter...anyone else have a baby that spit up alot?? Also, he is refusing to take the salt/juice formula from the bottle, which is how we gave it to him for a long time. Anyway, any advice would be great...look forward to getting to know you all :)