I was told 1 in 50 were carriers and 1 in 15,000 in the general population have CAH. You may want to refer to the Texas Newborn Screening page at http://www.tdh.state.tx.us/newborn/hand_cah.htm

It has a lot of good information. We get these handbooks and give to our teacher each year at school as well as the school nurse or any other caregivers.