re: re: CAH Survivor
Jan. 16th, 2005   2:31pm

I was born with sw cah in 1955 over the years I have been quite healthy. General colds and sore throats as a child.  I believe I was about 10yrs old when I was last hospitalized with an adrenal crisis.  Ten yrs ago I had an inflammed gall bladder and was hospitalized for about 10 days.

My bone density tests every 2yrs are within normal range.  I have very small cataracts, could be from life long steroid use?? I have been I prednisone for over 30yrs and have always been on Florinef.   Hope you find this info. helpful

Jan B.

Jan B
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks