I have a son with SWCAH, and a friend of mine just had her third child a baby girl whose newborn screening came back high.  They re did it and it was high again, so they did another more accurate test and it showed normal hight.  Like her level was 199 and 204 is considered high.  They told her she should still see and endo since it was borderline.  Her potassium and sodium were good.  So now they are waiting to see an endo, and they do not know if she will have CAH or not.  Her genitals were normal.  Has anyone else experienced  this.  My son was deathly ill by the time he was 7 days old and there was no doubt about his screening.  Thanks for your help.

 

Carrie