Dana To: CarrieCarrie- I am not sure on the levels what they should be to give a diagnosis. Since you know what to look for be sure to watch for the warning signs until they get a diagnosis. My daughter is a salt waster big time but she didn’t have sodium troubles until 2 weeks after she was born. She stayed in the NICU after she was born for 8 days while we were waiting for the test results to come back. Everyday her sodium, potassium everything showed normal. When we had our first visit with our endo which was the day after she was discharged from the hospital the endo was almost positive she was not going to be a salt waster. Then 2 days after our endo visit we had home nurses coming to take heel sticks and the 2nd day they came my endo called and said get to the ER as quick as possible that her sodium was 118 which is critical. She had just started showing some signs I would not have known to look for but I would now of an adrenal crisis the day the endo called.
P.S. When we saw our endo for the first time she told us it sometimes takes up to 3 weeks for a child to be diagnosed as a salt waster and sometimes it’s immediate. Best of luck to the baby your speaking of, if the child is diagnosed with CAH you could be alot of help to the parents! I just wanted to stress that we didn’t really think my daughter was a salt waster either but it can show up later. They were positive my daughter had CAH when we were discharged but again the sodium looked fine for the 8 days in the NICU.