re: re: re: Newborn with possible CAH-Dana
Jan. 21st, 2005   3:11pm

I am not sure how the non-classical would show up for newborn screening.  I also have a 2 year old son that I need to have testing done on.  We do not have an extensive newborn screening program in my state (Kentucky).   If my daughter had not been born with the ambiguous genitalia we could have lost her because there is no testing for CAH in our program.  It would have been worse for my son also because there wouldn’t have been any immediate physcial signs to clue them in to test any further than the normal screenings.  You know a good person to contact would be Kelly Leight at CARES have you talked to her yet?

Thanks-  Dana

   

Dana To: Carrie
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