Thanks everyone for your help and advice. It does make me very nervous but they have to live a normal life. Danny you are so right! All my family members know about his condition and the importance but some of them just blow it off like oh yeah ok. I still don’t think they know how important it is. They call me the queen of Dr. visits. Oh how I wish sometimes that we did not have to go all the time. I think they just don’t understand!! I will trust my instincts and probably until he turns 18 or how long he will let me I will be at every event!!!

Thanks Jenny