I have two living children with CAHSW and one the did not live, they are now 22 and 16, but we were never able to get any help and so glad to hear that the system are now looking at this as a disable. With all the trips to the dr. and hosptial you all need it and it never ends. The sick spell get less and less as they get older, my daught was in the hosptial about every 3 month till age 10 or 11. lucky I had a very welling family to help us, but even now with the 22 yr old she can not get any help for herself and has a hard time with jobs. School was also a hard thing for her because no mather how you can look the same you are not and they will never live a total normal life.

Brenda