ToniaWelcome to the board! It has saved my life and my sanity many times! Hope you find it as useful as I do. How old is your child with CAH? Thank you for your encouraging words and prayers. It has been a very difficult 3 months for us. We have 2 daughters (8 & 7) both with ssw cah. They were ill in December when they went on a girls weekend with their grandma and aunt to Chicago. They caught a tummy bug that caused them to vomit. As a result of that, they went into adrenal crisis. They were in the hospital for a few days in Chicago. They went into crisis and dehydration very quickly with this one! It was scary and I was sooooo glad to get them back and love them up with hugs and kisses. I felt terrible for not going. I stayed home (in Ohio) because I had a kidney stone.
Blessings,
Tonia