We have four kids (12,  11, 9 and 7) #s 2 and 4 have CAH. (A picture of the whole family is here.)

I’m funny about the significance of choices and behavior, and I felt that to not have more children would be to say that it was a mistake for Jonathan to be born. It wasn’t, and therefore I saw no reason not to have more children.

Jonathan had two adrenal crises before he was two -- the first, days after he was born, before they even knew he had CAH -- the second, due to a combination of mono and bad medicine (the now discontinued orange stuff) -- but none since. Ginny’s never had one.

In the past three weeks we’ve been hit with two of the stomach flues going around. It hit #3 (Benjamin, non-CAH) first, then Jonathan (#2), then Ginny (#4) and then a few days later Samuel. We were dosing Ginny and Jonathan at the same time, and had to run to the drug store to get more solu-cortef as well as Phenergan (and some Zofran in case the Phenergan didn’t work). Linda had a frustrating time trying to get the prescriptions filled and by the time she’d finally gotten home, they’d stopped throwing up. The next round hit a few days ago and hit all the kids except Ginny (That Zofran works quickly, but I’m told is expensive -- I’ll find out at the end of the month when we get the statement from the HMO)

Once they get past about 3 year-old their immune system develops more and they can handle things better. Having two kids with CAH really isn’t twice as hard, although it is somewhat harder -- but in the end the reward of being their parent, is worth it.