re: Question?
Feb. 16th, 2005   10:24am

Has your daughter been stressed dosed for an illness previously? My daughter is 7 and a half with CAH (SW). Every time she has been stressed dosed for an illness more than two or three days, her emotions are out of control. I have frequented this board for 5 years and have heard on and off that several have noticed the same behavior in their children after a stress dose week aslo. It happend more when my daughter was a bit younger than now. She is older now and can control some what her emotions. But I know after a long stress dose, she gets snippy and then weepy. Before when she was younger she would get wild and out of control. It was horrific to watch because she was normally a happy go lucky kid. I hated to see her emotionally fall apart. I would curse CAH those days. I would just hold her and calm her down best I could. Lots of patience was needed. Now that she is older we talk about how she feels after high doses and we work through them.

Now on the other hand she is also 15 months old. Did you ever hear of the toddler motto? "What’s mine is mine, what’s your’s is mine, what’s his is mine"....they think the world revolves around them. Wouldn’t you? You are so cute at that age. They are trying out their new found "self". They are getting older. They don’t call it terrible twos for nothing. Whatever the case is, you sound like you are in touch with your child’s feelings and emotions. You know what is different than a doctor would. Whatever the case is, follow through with disipline. Which in my definition is, times out, no Barney videos until they are nice again. It crushed my daughter. Even if it was a case of off levels, that can be no excuse to be totally lienient on them. (unless it is one of those emotional weeks after heavy stress dosing) You have to be the judge. BUT I still make sure she knows when she is doing something not nice even if it is after a stress dose or her levels are off. Someone said earlier on this board, these kids with CAH will have these emotional ups and downs. As a parent you have to help them work through them best you can, but always making sure they are treated as if they didn’t have CAH. My best advice would be, how would you treat your other children that do not have CAH if they threw a temper tantrum? If all her levels are good, and she wasn’t stressed dosed previously, then ask that question of yourself. Good luck and remember, "MINE,MINE MINE!!!" ha ha ha ha, enjoy them while they are young, it goes by too fast.

Laura (too)
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