I was wondering if anyone knows what can be done about the states that don’t do screening tests, Is there ways we can make our selfs heard.My state does the testing only because my daughter came back possitive on the test, They were trying to do away with the test but know they have to keep it. But I’m always thinking what in the world would our lifes have been like without it.We live in Rhode Island, I also want to start some fundraisers for CAH

                                                     Thanks Lisa