Hi Tony,

I responded to the new mom of a baby with CAH and I didn’t want you to feel left out. So, welcome to you too and congratulations on your little guy. I have 4 little men (10, 6(almost 7), 3 and 1) . I love having boys!!! Maybe because I still get to be the Queen!!!

My youngest two have CAH and I’ve got to tell you that I think they have a wonderful life ahead of them.  They have the advantage of getting excellent treatment and who knows, possibly a cure in the next 20 years.  In the meantime, they do everything their non CAH brothers did.  When you come to this website, usually it’s for support and help with problems that come up. Sometimes not even related to CAH but we always wonder. I worry alot. My husband doesn’t and thank God for that!!!!! 

You should have every hope that your child has just as much of a chance as anyone to have a happy, healthy life.  Hey...did you know that JFK had Addisons.  That is similar to CAH but they take supplements for much more than cortisone.  He was one of the best Presidents of the United States ever!!! Your child can do anything he sets his mind too. You will see in time that even when he has a few set backs...the best times of him life will outshine the bad ones.

He will get sick and maybe he will do better than you expect. My 3 yr old,who has CAH, has had all the regular childhood  illnesses not to mention a few stitches on his forehead, bumps and bruises and is a regular little rug rat. I wouldn’t change him for the world. I do worry but I would worry regardless. He is now playing baseball at the local YMCA with some of his little school mates (he goes to a church mothers day out program 2 times a week).   I leave him with babysitters and friends when my husband and I go out.  He has stayed with my inlaws when my husband and I went on an anniversary trip.  The baby, who has CAH too, is the cutest little guy...Of course I’m his mom so what would I say!!! I guess I just want you to know that even though people post their problems and questions here and sometimes you just cringe...it’s OK.  Your child is unique and may or may not ever have some of the issues discussed here. There will always be a time when he will be over or under medicated. We are not perfect but with good medical attention, love and support from you and your wife, your child will do fine.

Good luck and email or post any time.

Sandra