JENNAI’ve never heard of Ciradium Rhythem before, but I ame very interested. Please bear with me while I tell our story... When my son Alex was born I was told he was border line CAH. The Endo and Pedi. Doc at the time took two hand and wrist x-rays; one at a few weeks old and and another at one yr old. They said everything is fine. Took no more blood work, and told me the origanial test was prob mis- read; The Pedi.Doc told me to forget about it....7 years later, (this past summer) Alex had a major growth spurt.and started to notice alittle pubic hair. So, I found another Endo. He did another blood test and found Alex’s levels were way out of wack! His bone age was of a 12 year old. And we started Cortef 3x a day of 5mg each. ; Now 6 months later his hand and wrist is at 13 years old. We are not able to get his 17 OHP to come down from the 9 thousand range. This month we are going from Florida to North Carolina to see an Endo. at the UNC. I’m praying she will take him in her study. You see, we are running out of time. Alex only has a year and a half to grow before his bones close completely. He has also gone from size 7 in boys to size 16. With a 31 inch waist! His total appearence has changed so much in the past nine months.
Do any of you who use the Circadium Rhythm think this might help him?
Jenna