jennyWas wondering if anyone got something in the mail from an endo that was doing a survey on kidney or bladder infections on kids with CAH. Actually the survey had alot to do with after the surgery. Mine is a boy with SWCAH??? I didnt fill out the surgery because he has never had kidney or bladder problems and the surgery did not pertain to males. So.... the endo called me on the phone to ask me the questions. Has anyone with a male had kidney or bladder infections or problems??? I guess they are trying to right up some information on CAH. I had told them about how everyone doesn’t like the work intersex and how its always about ambegious genitals (sorry probally spelled those 2 words wrong). The endo informed me they are working on this and it will take along time to change the wording on all this!!!!!!!!! Just curious about all this!
Jenny