If it was not for this board and the Cares foundation I would be totally on my own  with a child with CAH. Do you Americians realize how fortunate you are to live in a country with such excellent resources and quality care???CAH is so rare where we live and resources are so limited.I have taken my child to the major centers in our country trying to get experienced surgeons for my child. There has been no problem finding a Dr. willing to book surgery, as my child is an intersting case for them. I just haven’t been able to find one with significant and recent experience. I almost feel as if I have learned too much from all this research....I had thought things could work out and we could come to the US but our insurance won’t allow it so now I don’t know what to do. Someone has suggested to me that we go with what is available here but when I am aware of what could be for her I cannot settle for something that will affect the rest of her life unless it is the best available.I am rambling, Be thankful for each other.