Hi Doris,

Just the fact that you came to this board on your own says a lot!! I agree that being well informed will help greatly especially when it comes to watching your granddaughter. As I read your post I was very touched because my own father has never quite believed anything could be genetically wrong with one of HIS grandchildren. He would roll his eyes when I would instruct them on giving shots etc. I never wanted to leave my daughter with him. This could have been great support but it wasn’t there. WE need a break from our children too! Also, it would be nice for my dad to ask how she is and understand what I was talking about with levels and bone age tests and blood draw traumas. Maybe you could go with them to some appointments as support? Just being there and understanding are wonderful things. You have already shown that you want to understand and care very much. I am sure your son and his family know this! By the way, my daughter is almost 5 and is doing very well. She goes to preschool (right across the street froom where I work) rides her bike without training wheels, skiis, hikes and is VERY smart! She is reading and loves to play math games of adding and subtracting. I love her so much. THings get easier and you settle into the routine of it all. Take care! Julia