Hi Doris, I can understand how you feel completely.  I have a 21 month old SWCAH girl. It was quite a shock when she was born.  Her first year of life she was hospitalized 4 times (not to mention tubes in ears)...it was so hard.  But I can tell you the best thing my mom and family have done for me and my husband is to show interest in CAH.  My husbands family shows no interest and totally downplays CAH, yet they want to constantly babysit my daughter, no way(I will never let them).  My mother and sister on the other hand have done research, asked questions and listened when I talked about it.....that helped alot....  It has gotten much easier since then, Ive learned alot and my stress level is going down finally.  I never thought it would.  God Bless you and your family...hang in there...