Isaac,

We live in southern Oregon and have a 10 month old SWCAH boy.  We also drive to Doernbecher every 3 or 4 months (it takes us 6 to 7 hours with an infant and a toddler - lots of potty stops).  Our endo is Dr. Katie Woods.  Our little guy is on Cortef and Florinef (we just stopped adding sodium chloride to his bottles about a month ago).  He has always been a smaller baby, but now he isn’t maintaining his growing curve on the height/weight charts.  His doctors are watching him closely and are not attributing his growth problems on CAH because his lab numbers are always OK.  We would love to help you and answer any questions if we can.

Janell