Julia when you say daughters levels are fine - when are you having the tests done -pre dose?  Is she on the correct dose of fludrocortisone? Is her renin level OK - how is her blood pressure - does it drop when she stands? My son had similar problems, we too at first were told it was nothing to do with his CAH - after extensive tests, it was proved that it was.  I would ask your endo to prove to you that it is not related  by getting a 24 hour profile done - it could be low cortisol related or to do with the blood pressure side of things.  Is your daughter losing weight?