Re surgery; You will be able to find a lot of helpful information from the cares foundation site and there is also a ton of good information from parents on this board who will be happy to share with you. If you decide on surgery my advise is to be very careful when you determine who your surgeon will be as it is extemely important that the procedure be done by a well experienced Doctor current in up to date techniques. There are a lot of Doctors with the desire to do this surgery but the outcome may not be the best for your child. Research the Doctor and his skill well.