My daughter was diagnosed with LOCAH about 4 years ago, she will be 12 years old next month.  She has been doing pretty good on her medications and growing nicely.  She takes Cortef 5mg in the am and 7.5 mg in the pm.  Within the past few weeks she has been having hair loss.  I first noticed significant thinning where she normally parts her hair.  We can camoflage it by parting it differently, but of course I am concerned about it getting worse.  Has anyone else experienced this?  We do have an appt with the endo on Thursday to hopefully find a cause.  Thanks for any input.

Kris