Our endo has never even mentioned the existence of Solu Cortef IV/IM shots
Apr. 4th, 2005   7:37am

Hi,

I am a mother of an 18-month lovely litlle SWCAH girl. My concern is, that our endo has never even mentioned us the existence of Solu Cortef IV/IM shots. It was in this web-site, where I first heared about it. Later on I asked her about it. Her answer was pretty confusing - she told us, that we do not need it. If she has an adrenal crisis we should keep on giving her small amounts of Cortef, and we should not be worried, a part of it will even be absorbed if she is vomiting.

I told her, that in the US all CAH parents have it, sometimes more than one (one at home, one in the car and one in the kindergarten). She responded, that the reason behind is probably, that it takes a long time to get an appointment at the endo, and some people live far from big cities, where immediate medical help is available.

Somehow I do not find this answer satisfactory - we are lucky, because we live quite close to the hospital, where our endo works, but we may go for a holiday, where she can not be reached within a short time. What’s more, in our country we do not have ERs, which makes the instant medical help more unaccessable.

I just feel confused, my heart tells me to get the shot, my endo tells me not to have it. I think I will listen to my heart :-)

Tami

Tamara Keszey
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks