re: re: re: Is there any parent out there whose son w/ swcah been misdiagnosed???
Apr. 7th, 2005   2:46pm

Hi Maria,

Why do you think you child was misdiagnosed? I thought my son had been misdiagnosed until we did the DNA tests with Dr. New’s lab. I did find out though that my son was not SW but a SV.   The DNA was what covinced me that he had CAH.  He was born naturally, never had any problems, ate well, slept well and never even came close to a crisis.  That is why I didn’t believe the doctors here when they told me he had SWCAH. I couldn’t believe it.  After the DNA, I did and he is doing great. In fact, we went on to have a 4th son and he also has CAH but they are both doing great!

Sandra

sandra
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