I am sorry you are having to deal with all of this, but unfortunately, we sometimes have to be the doctor!  At least we have to notice the problem and insist on some diagnosis and treatment.  I know what you mean because it took me 3 years to convince the drs that "something" was not right - and it was the CAH that they had missed.  Strange that you mention about her ankles having too much play in them.  Kristin has very loose joints.  She has sprained her ankles a couple of times and recently dislocated her shoulder but it went back in place because of the looseness of her joints.  Please keep us posted and let us know what the orthopaedic dr says.