re: re: What do we have to do?
Apr. 18th, 2005   11:59am

Dear Robyn,

First off sex and gender has everything to do with the brain but what I think about that doesn’t really matter : ) Yes, we are being used here and no matter how I try to explain CAH to you it’s not going to matter as how you told me in your above post.

The external genitals that look male aren’t formed like how male babies are but rather from a defective gland females with CAH only have female chromosomes and no testes.I thought that might be important but I realize it isn’t and the fact that  with CAH are really well endowed isn’t of interest.   Excessive adrogens yeah because of lack of cortisol and yet again you read from people I’m only interested in the external gential part and not the whole condition because really that little part serves MY purpose and what I need. It is like a sound bite that is used in the wrong place to justify someone’s agenda . Most girls with CAH only have enlarged clitorises but You are after the rare ones of us because you have a theory that feminism has to do with more compasionate for someone born like me?

I’ve tried to explain things to you but it didn’t get through. CAH comes from an adrenal problem and not anything gender or sexual but you don’t want to follow it to that next step which then makes it what it really is a metabolic error but you need that blurring of sexes for your hook.

 You’ll use this condition and you will get an A . I’m not offended or upset by discouraged that yet again CAH is being raped to serve a different purpose by you and after reading the way you are connecting feminism to CAH really isn’t right and rather idealistic and jugemental of men ---male doctors ---  and as someone with this condition that does make me mad. Are you a male doctor hater ? Women? feminism? and more compassion and understanding? This is a medical condition and just like other medical condiitons when doctors (males and females) are learning they might forget that there is a patient attached to that condition because they are so exicited about learning about that condition but they do and say the wrong things but underneath all that they have compassion and understanding. As for CAH? Honey we fasinate the hell out of doctors. So much that other problems that may kill you quicker are missed---I can laugh know about that one. In my 34 years, I’ve by far had more compassion and understanding from men than women. So,I’m not really seeing what you are writing about. Sure people rant and vent about there medical condition but that is normal. I’m amazed at how far research as come with CAH. Why do you think this is a taboo subject? Or no research? The University where I was at has been researching CAH since 1873.  Research today? Great research is going on. You crake me up. this is a condition that you have ..a sufferer.... Oh my gosh the drama... everyone has something to deal with and I bet you do to. To call someone a sufferer is really victimizing them.

"Studies into the distinctions into the distinctions and similarities between the sexes are being more thourghly investigated" Used for others gains as a tool. Enough please ..I’m sitting here writingto you as a real person. Some girls w/ CAH played with trucks and some with dolls but oh my gosh isn’t this facinating ..shhh... look some girls put the girls in the trucks .I preferred doll houses myself and sometimes those little cap guns BUT and here is the important part so did my friends without CAH. This stuff has been done ...Meanwhile parents of today and me to would like to know why sometimes we  go off in these angry rages I think studies like that are going to come.

Aimee
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