re: re: Why?
Apr. 18th, 2005   12:36pm

Robyn,

You don’t get it and that’s why you think it’s peachy to use CAH like this and that with respect keeps the misunderstanding about this birth defect going. I wonder how long do we have to be used as a prop for something else? when does this stop? CAH in many ways is more similair to diabetes but we have people like you doing papers and using us as objects for something else.

Many women have male attributes but they don’t have CAH and a female with CAH might have male attributes because of the CAH or also because it’s genetic. And it’s sad that this is the ONLY thing with CAH that when people write they want to concentrate on AND IT really adds a stigma to a condition. That you are fueling unintentionally I’m sitting here really trying to relate so get it. For example, Nurses will come right out an tell me that you "don’t fit the characteristics" or "Nobody can tell" It’s like what did you think I was supposed to look like? A lot of this has to do with articles and papers that are generated. Hydrocortisone develpoed in the 50’s gives us the cortisol that others make on their own like people with diabeties take insulin. We aren’t different from others that have medical conditions but because of what happens because of lack of cortisone in utero and having baby girls that might have external gentials that might look externally male which is the extreme of the prader scale and going down to looking like not male or female (very cool) to an enlarged clitoris  to typical looking. Couseling is a good thing for anyone regardless of a condition. Oh doctor so and so is nice BUT you still have to process and go on and live with a condition. The combat boot thing? anything having to do with gender people want to study us.   Anything male gender? Oh it’s because of the CAH whereas someone without CAH can do the samething and they don’t have that crap of a label put upon them.

Aimee
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