Here is an email I sent to my contacts....I am asking that you please forward to your contacts via email - please substitute your story in plac of mine and/or add it to the chain.....LETS BRING AWARENESS AND HELP SAVE LIVES

 

Motivated by an organization called Save Babies Through Screening Foundation I am asking that you please do the following and then forward to as many people as you can to help bring awareness to CAH and other genetic disorders that affect babies nationwide. I am sending the following to everyone I know via email and ask that you do the same - keep the chain going, if enough people show interest we may have a chance:

Call To Action
Please write to the Oprah show requesting that she include newborn screening as a topic for one of her shows: https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=B2100004

As many of you may know - I could have lost Aidan just 4-6 weeks after birth due to heart failure that would have been caused by CAH.  It was only because Oklahoma added CAH to their newborn screening just 11 days before his birth that he is with us and 100% healthy today!  Please use the link below to submit a request to Oprah to add Newborn Screening to her show topic.  What I didn’t know - could have cost me my child’s life!!!!!

If you would like to read Aidan’s story see: http://www.savebabies.org/familystories/AidanCAH.php

For more information on newborn screening please see www.savebabies.org