I totally agree with you.  If you  want to, Dr. Phil is also an option.  If you want to share your story with him as well, in an effort to get this topic of newborn screening out to the public, go to https://www.drphil.com/drphilplugger/templates/BeOnTheShow.jhtml?action=respond&plugId=D170300001

 

This is the area of his website that is used to get on his show.  I actually wrote to the parenting issues section because that is the area that fit most closely.

 

Thanks,

Robin